full transcript
From the Ted Talk by Sharon Terry: Science didn't understand my kids' rare disease until I decided to study it
Unscramble the Blue Letters
So it's two days before Christmas, 1994, and the dermatologist tekas a quick look at her neck and says, "She has pseudoxanthoma elasticum." And then he shuts off the lights and looks in her eyes. It turns out, by chance, this dermatologist also taiernd in ophthalmology. Our lucky day. I am sick to my smtaoch. "Oma?" Oma's like melanoma, lmyopmha — cancer. "Why are you looking in her eyes for a skin rash?" I scream and make no suond.
So there it is. Elizabeth has pseudoxanthoma elasticum, PXE for short. Questions mix with fear and erupt like bile in my throat. Why are you looking in her eyes? What do you know about this? How do you know for sure? What is the prognosis? My tnrniiag in pastoral clunoensig did not prepare me for this.
Open Cloze
So it's two days before Christmas, 1994, and the dermatologist _____ a quick look at her neck and says, "She has pseudoxanthoma elasticum." And then he shuts off the lights and looks in her eyes. It turns out, by chance, this dermatologist also _______ in ophthalmology. Our lucky day. I am sick to my _______. "Oma?" Oma's like melanoma, ________ — cancer. "Why are you looking in her eyes for a skin rash?" I scream and make no _____.
So there it is. Elizabeth has pseudoxanthoma elasticum, PXE for short. Questions mix with fear and erupt like bile in my throat. Why are you looking in her eyes? What do you know about this? How do you know for sure? What is the prognosis? My ________ in pastoral __________ did not prepare me for this.
Solution
- counseling
- trained
- sound
- lymphoma
- stomach
- takes
- training
Original Text
So it's two days before Christmas, 1994, and the dermatologist takes a quick look at her neck and says, "She has pseudoxanthoma elasticum." And then he shuts off the lights and looks in her eyes. It turns out, by chance, this dermatologist also trained in ophthalmology. Our lucky day. I am sick to my stomach. "Oma?" Oma's like melanoma, lymphoma — cancer. "Why are you looking in her eyes for a skin rash?" I scream and make no sound.
So there it is. Elizabeth has pseudoxanthoma elasticum, PXE for short. Questions mix with fear and erupt like bile in my throat. Why are you looking in her eyes? What do you know about this? How do you know for sure? What is the prognosis? My training in pastoral counseling did not prepare me for this.
Frequently Occurring Word Combinations
ngrams of length 2
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Important Words
- bile
- cancer
- chance
- christmas
- counseling
- day
- days
- dermatologist
- elasticum
- elizabeth
- erupt
- eyes
- fear
- lights
- lucky
- lymphoma
- melanoma
- mix
- neck
- ophthalmology
- pastoral
- prepare
- prognosis
- pseudoxanthoma
- pxe
- questions
- quick
- rash
- scream
- short
- shuts
- sick
- skin
- sound
- stomach
- takes
- throat
- trained
- training
- turns