full transcript

From the Ted Talk by Sharon Terry: Science didn't understand my kids' rare disease until I decided to study it


Unscramble the Blue Letters


So it's two days before Christmas, 1994, and the dermatologist tekas a quick look at her neck and says, "She has pseudoxanthoma elasticum." And then he shuts off the lights and looks in her eyes. It turns out, by chance, this dermatologist also taiernd in ophthalmology. Our lucky day. I am sick to my smtaoch. "Oma?" Oma's like melanoma, lmyopmha — cancer. "Why are you looking in her eyes for a skin rash?" I scream and make no suond.

So there it is. Elizabeth has pseudoxanthoma elasticum, PXE for short. Questions mix with fear and erupt like bile in my throat. Why are you looking in her eyes? What do you know about this? How do you know for sure? What is the prognosis? My tnrniiag in pastoral clunoensig did not prepare me for this.

Open Cloze


So it's two days before Christmas, 1994, and the dermatologist _____ a quick look at her neck and says, "She has pseudoxanthoma elasticum." And then he shuts off the lights and looks in her eyes. It turns out, by chance, this dermatologist also _______ in ophthalmology. Our lucky day. I am sick to my _______. "Oma?" Oma's like melanoma, ________ — cancer. "Why are you looking in her eyes for a skin rash?" I scream and make no _____.

So there it is. Elizabeth has pseudoxanthoma elasticum, PXE for short. Questions mix with fear and erupt like bile in my throat. Why are you looking in her eyes? What do you know about this? How do you know for sure? What is the prognosis? My ________ in pastoral __________ did not prepare me for this.

Solution


  1. counseling
  2. trained
  3. sound
  4. lymphoma
  5. stomach
  6. takes
  7. training

Original Text


So it's two days before Christmas, 1994, and the dermatologist takes a quick look at her neck and says, "She has pseudoxanthoma elasticum." And then he shuts off the lights and looks in her eyes. It turns out, by chance, this dermatologist also trained in ophthalmology. Our lucky day. I am sick to my stomach. "Oma?" Oma's like melanoma, lymphoma — cancer. "Why are you looking in her eyes for a skin rash?" I scream and make no sound.

So there it is. Elizabeth has pseudoxanthoma elasticum, PXE for short. Questions mix with fear and erupt like bile in my throat. Why are you looking in her eyes? What do you know about this? How do you know for sure? What is the prognosis? My training in pastoral counseling did not prepare me for this.

Frequently Occurring Word Combinations


ngrams of length 2

collocation frequency
love people 3
husband pat 2
genetic alliance 2



Important Words


  1. bile
  2. cancer
  3. chance
  4. christmas
  5. counseling
  6. day
  7. days
  8. dermatologist
  9. elasticum
  10. elizabeth
  11. erupt
  12. eyes
  13. fear
  14. lights
  15. lucky
  16. lymphoma
  17. melanoma
  18. mix
  19. neck
  20. ophthalmology
  21. pastoral
  22. prepare
  23. prognosis
  24. pseudoxanthoma
  25. pxe
  26. questions
  27. quick
  28. rash
  29. scream
  30. short
  31. shuts
  32. sick
  33. skin
  34. sound
  35. stomach
  36. takes
  37. throat
  38. trained
  39. training
  40. turns